
So, I managed to get through to the NHS-provided service that handles my medication titration. I called just after 9am and sat on hold, listening to the same passive-aggressive messages over and over, warning me that if I break any of their billion rules, I’ll be discharged. Eventually, someone answered.
I explained the situation. I’ve got a medication review on Thursday, but last time the pharmacy had to order my meds in specially, which took a few days. That means this time, I’m likely to run out and be without medication for two days. Saying they didn’t really care feels like an understatement.
They refused to refer me to a clinician because my medication is a controlled drug. I’m not sure why that matters. I still have four capsules left. I wasn’t asking for months’ worth, just a two-week prescription a few days early to avoid a gap. But instead of offering support, they handed the problem back to me. I had to call the pharmacy myself to check stock or just wait and hope things work out on Thursday. There were no earlier appointments available, and if I wanted to reschedule, the next option was sometime next week — which completely misses the point.
It’s incredibly hard for someone who’s spent nearly 40 years not knowing what was going on with their brain, finally finds something that seems to help, only to face the stress of that support being temporarily yanked away. It’s no wonder people get frustrated and upset on the phone.
Anyway, into the medication roulette wheel I go. Let’s hope on Thursday they process the prescription fast enough for the pharmacy to have it in stock. Until then, I wait. And hope